Thursday Daniel and I went to clinic to say our last goodbye and complete the discharge paperwork. It was hard to leave on such a bad note because Daniel was definitely not feeling good. He didn't really want to be social with anyone and they all loved him so much that it was hard to see him not interacting with them like he was the weeks before. It was bittersweet because I would have liked to walk out of there with him eating so much by mouth and we walked out with him eating nothing. Don't get me wrong, I know that he will pick back up with his eating it was just sad for me and for the people at clinic. I made some really close friends and will cherish all the memories and am so glad we made the decision to go because Daniel really came a long way with his eating and now we just need to get back on track. We went back to the hotel to wait on daddy's plane and then picked him up at the airport. We stayed overnight and finally on day fifty nine, we left Richmond VA.
Friday & Saturday - we hit the road early on Friday because Eric and I were both sure that Daniel was going to need to be admitted to Children's in Dayton. The trip was a good one and Daniel was comfortable in the backseat watching a video for the entire trip. We arrived home at about 7:00pm and called the doc on call at Children's. She finally called back and said that we needed to bring him in. Let me tell you that Abi was not happy that we had just gotten home and had to leave again. Daniel and I got to Children's at about 8:30 pm and finally at 5:00am on Saturday we were up in a room. I hate emergency departments!!! Daniel got IV fluids from the time we got to the ER until late Saturday night at which time they changed him over to 1/2 strength formula. He did well. He still didn't look good but he wasn't getting any worse.
Sunday (Easter) - They started full strength feeds and he needed to stay on them for 24 hours. Mamaw and Papaw came and stayed with him so I could go home and be with Abi for a while since it was Easter. The Easter Bunny visited and hid some eggs around the house and her Easter basket and she was so extremely excited. She said she was a little sad that Daniel wasn't home to help her find eggs and that made me step back a little. She is so grown up! It amazes me everyday. We called on Daniel throughout the day and he continued to do well so they said we could probably go home on Monday.
Monday - the doc came in and said since he is doing well we could go home but no eating by mouth for a day or so. They have had him on feeds for 24 hours straight so we need to wean him back down to just 12 hours at night before we can feed him again. This will take me a day or so to do. Hopefully by Wednesday or Thursday I'll have him eating again. Please keep us in your thoughts that this is the end of this nasty virus. He is still looking a little "off" so I'll just have to wait and see.
Well, I gotta get off here. I'll update again soon.
-Angela-
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