I didn't post yesterday (Tuesday) because it was not a good day. We went off to the clinic in the morning but by the time we got there Daniel was looking extremely pale and was not in the mood to eat. We decided to go home and take another day off. Well, by 6:30pm last night he was "dumping" big time. Everything that was going in was going out and he was not staying hydrated. I decided that we needed to make a trip to the ER and upon checking his blood we found he was dehydrated and needed to get some fluids. We were at the hospital until after midnight at which time his blood levels showed no dehydration. We were instructed that he can't have anything except pedialyte until tonight at bedtime. At that time, I will change him to 1/2 strength formula until tomorrow afternoon and then change him over to full strength formula. Would you all take a moment to cross your fingers and toes that he can tolerate starting his feeds back up. He caught this virus and it has really taken it's toll on him. We need his intestines to start working and accept the formula before we can feed him by mouth again.
We are still going to leave on Friday. I called the clinic today and Daniel and I will visit there in the morning to say goodbye to everyone and sign Daniel's discharge paperwork. They say even with this set back we are okay to go. Daniel knows the protocol and so do I so we shouldn't have any problem getting him back to oral eating when he is well enough to do so. We could have opted to stay another week but we need to get home and get closer to his regular doctors. If he doesn't tolerate his formula when we start them back up, we most likely will need to be admitted to the hospial to receive nutrition until his intestines get back to where they were. If that happens, I don't want it to be here in Richmond, I want it to be at home. I'm really sad that our journey here will end on such a downer because I wanted Daniel to experience having his "graduation" party from the feeding clinic and for Daniel to show off his new eating talents to G&G Heyne and Mamaw & Papaw when he came home. While we won't have the "graduation" part at the clinic, he will show off all his new talents when he's feeling better.
Well, I gotta go. I hate even writing about this. I wanted to write about how well Daniel was doing and instead I gotta write about how sick he is.
-Angela-
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HELLO SIS,I AM SORRY TO HEAR THAT DANIEL IS STILL NOT FEELING WELL.I HOPE HE GETS BETTER SOON.I AM ALSO SORRY TO HERE HE CAN'T HAVE HIS GRADUATION THAT STINKS TO HE DESERVES IT FOR ALL HE'S DONE. BUT HE CAN SURE SHOW OFF FOR ALL US WHEN HE GETS TO FEELING BETTER. THAT FLU WAS REALLY BAD AROUND HERE MY KIDS DIDN'T REALLY HAVE IT BUT THERE COUSINS DID AND THEY WERE HOME FORM SCHOOL ALL WEEK.
ReplyDeleteI AGREE WITH YOU THO IT WILL BE BETTER TO BE HOME AND DANIEL PROBABLY NEEDS THAT TO.
WE LOVE AND MISS YOU LOTS.GIVE DANIEL A BIG HUG FOR ME.
LOVE YOUR SIS,SHERYL
PS.I KNOW ITS ROUGH FOR IT TO END THIS WAY BUT YOU DID AN AMAZING JOB.
ang dont worry about that u guys have done really good. for the time u spent danny will get better as time goes on. we think u did great and remeber all goes well for thoughs that wait. so when u get home u will just have to take some time and work with danny! we are all on ur side and will help anyway possible.I love u much and will help any way i can. love u both lots kenny &katy
ReplyDeletepss
big hugs I know u both need them
love ya kenard