Another day gone by! Daniel did well and took 23.6 oz in clinic and another 8.8 oz tonight for a total volume of 32.4. He needs 50 oz per day so we are short 17.6 oz to be totally tube free. As I have said before, we won't meet 50 oz on a clinic day because the meals are too close together. Tomorrow and Sunday will be telling to see how much he can take on a day when we are home and I feed him all 5 meals. I'm hoping that we can do both days tube free but I'll have to wait and see. I don't want to push him too far and am anxious and emotional too. Eric and I are scared, nervous and every other emotion you can think about. We want this to work for Daniel but we also don't want to push his body too much. I won't be disappointed if he can't make 50 oz every day and we have to use the pump a little when we get home. I just can't believe how well he is doing. We have never pushed so many changes in such a short amount of time. Please just keep Daniel in your thoughts that he can do this and most of all that his body can handle it.
Abi continues to do well. Last night was the first night that she asked "when are you coming home mama?" I thought the question would come earlier than it did but I think all of us are ready to be home. 2 more weeks and I will be there Sweet Pea! I miss you so much and love you more than ever. You have been through so much even though you are healthy. You have endured so much for your little brother. He loves you so much too!
Off to bed - will update tomorrow to let you know what Daniel's volume for the day is.
-Angela-
Friday, March 27, 2009
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