Day Twenty Four

Today started off bad and became stellar! Daniel did not tolerate the food they gave him yesterday. He had peaches in the morning and carrots in the afternoon. When they work on getting volume into a child they usually only use 1 food. I had explained to them that I would not normally use a single food and would instead use multiple foods mixed together. Example, instead of just plain peaches, I would use peaches/banana/oatmeal. They didn't see the need to do this so they were using single foods. I believe that the peaches were what did him in and he just didn't tolerate the amount that they gave him. He started dumping last night and into the morning. I gave him some pedialyte to make up for the dumping and we went to the clinic anyway because I wanted them to see what it did to him. I took some of the food that I had been using at home and asked them to feed him using that instead of what they were used to using. The beginning was not good because he was still dumping and he was also gagging/wretching and even threw up a little. However, by the 3rd feed using my food he was getting back to normal and by the end of the day he still took 17.6 oz of food/drink during his meals. I think this is terrific based on how he was feeling this morning. I have also been working with him trying to get him to drink more of his special juice during the breaks from feeding and he did great today. In addition to the 17.6 oz of food/drink during the meals, he also took in about 14 oz of juice. So, the grand total for today is 31.6!!!!!! That means that he only needs to be on his pump 6.5 hours tonight.

Also, I am meeting with the nutritionalist on Monday morning and we are going to work on a diet where we don't use just 1 food. Daniel's meals will consist of a mixture of different foods so his body will be able to handle them. I just wish they would have listened to me in the first place. Oh well, who said Mom knows best???

Well, I'm off here for tonight. Tomorrow my goal is to see how much juice I can get Daniel to drink in one day. We need him to be consistent with the amounts so I need to work on this and see what he can do. Keep your fingers crossed that it's a lot!

-Angela-