Friday, March 20, 2009

Day Thirty Eight

Today was a good day! Daniel is doing better with his drink but not as good as we need him to be. His eating of food is great. This weekend, I will be working with him to get the volume of juice upward. We set the limit at 3.5 oz per meal so he will need to drink that much. If he doesn't finish during the 20 minute meal, he will have to sit at the table and drink until he takes at least 3.5 oz. I asked them how long I should let him sit there and they said "until he drinks it". They said that based on the fact that Daniel likes to play, run and go outside it will most likely only take 2 times of him having to sit at the table before he takes bigger sips of the drink and finishes during the meal. Once he gets to 3.5 oz we will work up to 4 oz. This is basically what he will need to drink so we are getting there. I'll let you know tomorrow night when I post if he had to sit at the table or not.

Daniel's total volume for today was 30.9 oz! He really only needs 2 more oz per meal and he would be totally off the feeding tube. We are working on it. We have 3 more weeks and Daniel is progressing each day. I was surprised that he did as well as he did today because he is still not feeling 100%. He is coughing and congested so I was happy with what we did today.

Check back tomorrow night and I'll let you know how he does.

-Angela-

1 comment:

  1. I'm sorry I've been so crappy about commenting here, but I wanted you to know I have been keeping up with it. I'm so glad things are going so well! Keep up the good work Daniel.

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