Day Seventeen

A great Friday! Daniel's volume was down a little bit (16.8 oz) but we are trying new foods and this morning he had mango. He was not real thrilled with mango so I knew after the 1st and 2nd feeds that his total for the day would be down. However, based on the fact that he didn't really care for the mango, he still did well. Adding his total by mouth during the feedings of 16.8 oz and 2 juice boxes today, he took in a total of 32.8 oz by mouth. So, he only needs to be tube fed for 6 hours tonight!!!! Since Daniel is doing so well, starting next week on Wednesday (I believe), I will get to sit in on the feedings and learn to properly place the spoon. Then, I will start to feed 1 meal when we get home for 3 days as training and if all is going well, I will get to do all his feeds next weekend.

Also, starting Monday, they are going to replace his special juice with vanilla soy milk. This soy milk has the same calories as his juice and we will be able to buy it at the grocery store. I will warn you all now that I doubt his volumes will be as high for the first few days when they try this because he doesn't like to drink anything other than his juice. I have tried this soy milk at home and he would not drink it for me. The feeding therapists have other techniques so I'm hoping they will be able to get him to drink it. And, I'm asking you all to cross your fingers that his body will tolerate it. It would be wonderful to get him drinking something that we can buy at the grocery store!

Abi is doing fine. She is home with Daddy for the weekend and ready to play with him all weekend long. She was home for the whole weekend last week and by the end of the weekend Eric said she wore him out. I thought this was hilarious because how does he think I feel after 24/7 with Abi and Daniel. Needless to say, there wasn't much sympathy on my end, lol.

Well, I'm off to bed.

-Angela-